Trying to Find Stability Post-Nephrectomy
What’s Happening I’ve been talking quite a bit to my dietician, primary care physician, and a new doctor who is a neurogastroenterologist (specializes in MCAS, dysautonmia, GI, POTS, and EDS). Unfortunately, they are all at different locations/heath systems so I have to coordinate. My instinct is to hide and not share any of this because it’s messy and I’m in the middle of it with no real action yet. But I’m going to try and share some of it. Because as we all know, none of this journey has been straightforward or easy. I’ve been feeling very unwell. And though the surgery did contribute some extra trauma to my body and cause more mast cell activation… it’s not the main culprit. I’ve mentioned a few times now that I’m still dealing with SMAS (duodenum compression). Because of that it’s impacting my whole body. There’s so much at play with makes it hard for me to articulate a good explanation. It creates a continuous bad cycle on the hamster wheel. SMAS puts my body under constant strai...