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Showing posts from September, 2024

vascular compressions: a day in the life

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 A month or so ago, Theodore was hanging out with me in the living room. And out of nowhere he asked why I had to have this rare health issue. Wanted to know how I got it and how common it is. I explained that I was just born this way. Then we searched to see what the internet said for how common it is. It said about 2 out of 100,000 people. This is referring to median arcuate ligament syndrome , which is when there is compression of the celiac artery and you have symptoms because of it. They think anywhere from 10-25% of people have the compression without symptoms. After I told him about the 2 out of 100,000 he immediately said, “So you could be the ONLY person in Mankato who has this!?” I had never thought about it that way, but he’s right, I could be. Though as we’ve witnessed with my journey, it’s ridiculously challenging to rule out all the things and get a diagnosis. So how many people struggle with MALS and have no idea?! Theodore was just so sincere in all his questio...